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You are here: Home / Archives for Health Fitness and Beauty / Inflammatory bowel disease

The Pentasa Fairy

May 15, 2010 by Tricia

I ran into one of my neighbors daughters earlier today. Well … I didn’t actually run into her, but you know what I mean. LOL

My husband and I had just come back from shopping and as she was walking down the street towards her car she stopped to say hello to us.

She’s the lady I have called in past posts – “The Pentasa Fairy”. Why? Well she works in a medical building and when she found out I was taking Pentasa for my Crohn’s (it’s an anti-inflammatory type medicine) she went around to several of the gastrointestinal specialists in her building and collected sample boxes of Pentassa for me. Between December and March she dropped off meds at my house twice and all in all she gave me enough that I went about 5 months without having to pay for this expensive medication. Pretty cool since we don’t have a drug plan. I figure she saved me about $800.

She’d just drop it off in a bag outside our door … she’d never knock she’d just leave the meds and go … We started saying oh wow the Pentasa Fairy’s been here when we’d find a bag full of Pentasa samples outside the door.

One of the first things she asked me today when we were talking was if I had enough Pentasa and when I said I’d run out of her “gift” she said she’d ask her doctors if they had any more. It would be sweet if she could get more because it really helps us out.

It sounds like she makes a habit of getting drug samples from the doctors in her medical building. She gets everything from blood pressure meds to medicines that treat acne for people she knows.

Many of our neighbors are Greek – not odd since we live in a fairly Greek neighborhood. While my husband and I were talking with our neighbors daughter she told us that they always refer to my husband as Saint Christo in part because he’s so nice is always doing nice things for the people in our neighborhood and also because his name means “Christ” in Greek.

She then asked me if my full name was Patricia and yep – it is. Then she told me that my name in Greek sometimes means Virgin Mary. LOL So Chris and I are Christ and the Virgin Mary. No wonder the neighbors were so happy when we moved in!

Do you do nice things for your neighbors or have one or two in your area that do very nice things for you? I love my neighborhood it’s just full of nice people like my neighbors daughter.





Filed Under: Health Fitness and Beauty, Home and Lifestyle, Inflammatory bowel disease, Items to Try, Toronto Tagged With: Doctors, drop off, Fairy, gift, good people, Greek neighborhood, meaning of name, medical office, medication samples, neighbors, nice, saved money

Darn food allergies

May 15, 2010 by Tricia

Well I think my weird new allergies have finally settled down. Man I hate having to add more foods to the list of things that I can no longer eat. Between my allergies and Crohn’s the list is getting fairly long!

So no more pineapple, no more shrimp or any kind of shellfish … and the list goes on. I never did eat much shellfish, but occasionally … perhaps for my birthday I’d ask my husband to take me out for Lobster. Now I can’t do that. Grrr

At least a lot of the foods that I can’t eat due to allergies are ones that I only ate once in a while – it would be worse if it was something that I ate regularly … Uhm … but then, now that i think about it- when I add in the foods I can’t eat because of Crohns (like corn or any kind, raw veggies and so on) I guess there is a lot of regular foods that I can’t eat that most people eat at least once a week if not daily.

Do you have some foods that you can’t eat because you’re allergic to them or because your body doesn’t react to them well? It kind of sucks doesn’t it?

Ok gotta run .. my neighbor just got a new tm-t88iv printer for their business that they want to show me … plus they want to put up a new fence between our houses in the backyard because the one we share is about to fall down so we have to discuss what we’d all like and when to get the work done.

Filed Under: Health Fitness and Beauty, Home and Lifestyle, Inflammatory bowel disease, Items to Try, Toronto Tagged With: avoid, cant eat, crohns, food allergies, list, lobster, neighbors, new fence, pineapple, react, reaction, sensitive, shellfish, shrimp, sucks

I think I’m allergic to pineapple – how odd!

May 5, 2010 by Tricia

I feel like I’ve been through the wringer again this week. Sigh …

Remember last week when I told you that we’d purchased two fresh pineapples at Costco and I was happy to be eating them because 1. they taste delicious, and 2. because, since I have Crohn’s, I thought the natural anti-inflammatory action and digestive enzymes in pineapples might actually help me?

Well … it seems I was wrong. My body has decided that it hates pineapples.

I cut up the first one the Sunday before last … then the next day I had horrible horrible abdominal pain all day. I can’t remember much of that day other than horrid pain and muttering under my breath “kill me now, kill me now”. Yes, that’s how bad I felt. On the Tuesday I felt a little better but I was dizzy and weak. By last Wednesday I was starting to feel a little bit more like myself and by Thursday of last week I actually felt pretty good.

I think I only ate pineapple on the Sunday – a while after it was freshly cut – and then didn’t eat anymore until maybe Wednesday night. Since I felt ok on Thursday I didn’t think it was the pineapple that had made me feel bad. I just thought I’d gone into a really bad Crohn’s flare … one that didn’t last that long ..

Last Thursday I cut up the second fresh pineapple and my husband and I ate some for desert later that evening after dinner.

Shortly after eating the fresh pineapple the edges of my lips started to burn as if I’d eaten some hot spicy food. I think my tongue tip felt a little tingly as well, but it was my lips and the edges of my mouth that bothered me the most. It was a very irritating almost like I had a bad sunburn on my lips.

Shortly after my lips started burning I did a search on the internet to see if pineapple could cause the symptoms that I was experiencing and I found out that some people get a tingling itchy tongue when they eat fresh pineapple. Apparently the core of the pineapple contains most of the Bromelain (digestive enzyme) and that if you eat some of the core you might have a tingling tongue or itchy mouth for about an hour. If you experience this storing fresh cut pineapple in the fridge for a day usually stops this reaction from happening.

Well my symptoms were a little different than described and they didn’t just last an hour. By 11 pm when my lips felt like they were on fire and I was starting to get itchy skin (yet no hives) I decided that maybe I was having more than just a reaction to the Bromelain in the pineapple and that I might either be extremely sensitive or even allergic to pineapple.

Last Friday, the day after eating fresh pineapple, my abdomen was again in severe pain. Bad enough that I found myself wishing I’d just die rather than go through such severe pain any longer. I don’t get that bad very often, but I’d say my pain was a 15 out of 10 that day. Bad! Oh and my lips were slightly swollen (stayed swollen until Sunday) and still burning although not as severely as in the first few hours after eating the pineapple.

By this past Saturday I was again feeling a little bit better but it wasn’t until Sunday that I felt more like myself.

I guess I won’t be eating pineapple anymore!

Oh and last night my husband was finishing up the last of the fresh pineapple and I pulled out two pieces with my fingers to put in my dogs food bowl. Without thinking I reflexively licked the tiny bit of pineapple juice off my fingers and almost right away one side of my lip was burning and a little bit swollen. I got hives later in the evening … so it seems more and more like an allergic reaction.

My husband is disappointed because 1. he really likes having fresh pineapple (I told him we could still buy some, he’d just have to cut it up and eat it all himself) and 2. he’d hoped the pineapple would help me out … not make me sick.

I’m trying so hard to get healthier and get out of these constant Crohn’s flares that I keep having. It’s like for every step forward I take I take two steps back when something goes wrong. I also want to quit smoking (yes I’m bad, I smoke) so I’m thinking of trying one of those e cigarettes but I think I’ll wait until my Crohn’s settles again before making another big change.

In the meantime .. I’ve also started taking drinkable Aloe Vera gel and probiotics as both of those can help people with Crohns. I didn’t start them until this past Sunday, once I was sure I was over my pineapple reaction and so far so good.

Have you ever had a problem eating pineapples – maybe a reaction to the Bromelain? Or do you have or have you heard of someone being allergic to pineapple?

Filed Under: Chronic Pain, Health Fitness and Beauty, Home and Lifestyle, Inflammatory bowel disease Tagged With: abdomen, abdomenal pain, allergic reaction, allergy, awful pain, bromelain, burning lips, dizzy, faint, fresh cut pineapple, fresh pineapple, hurt, pineapple, reaction, sensitive, sick, stomach, swollen lip

My Crohn’s is acting up again

April 27, 2010 by Tricia

Uh, I’m feeling absolutely awful today. Actually I’ve been feeling bad for a few days and I don’t know which day was worse.

My Crohn’s is acting up again.

I guess spending the last few months fighting colds, pneumonia, and a flu like bug irritated my system and got a Crohn’s flare going. The sad thing is that even though I’ve been so sick this year I started to notice in February or so that my abdomen was starting to feel a bit better. I began to wonder if I might be able to go back to work soon.

Yesterday my stomach/abdomen was hurting so bad that I couldn’t do anything. I wasn’t reading my emails or even playing with a puzzle game on my computer let alone getting any work on my sites done. I just lay on the couch watching TV.

My abdomen felt like I had someone making a fist and pushing it through my intestines and stomach. I don’t think I could have felt worse if I drank acne face wash or something similar. Uhh.

The pain wasn’t as bad today as it was yesterday, but instead of hurting I just feel really off. I feel dizzy, and weak. I actually almost fainted a while after I got up this morning. I also have had several very high fevers over the last few days.

Hopefully this Crohn’s flare doesn’t last too long. What I mean is this “increased” flare … because I’ve actually been in a bad Crohn’s flare that hasn’t let up for about six years. Hopefully it gets down to a tolerable level soon.

In the meantime if I’m silent for a few days it’s because I’m probably not feeling very well and I’m resting, hoping to feel better. Plus it’s not easy to blog when you’re in pain … it’s hard to think.

Filed Under: Chronic Pain, Health Fitness and Beauty, Home and Lifestyle, Inflammatory bowel disease, Items to Try Tagged With: abdomen, abdominal pain, crohns, dizzy, faint, fevers, flare, high fever, IBD, ill, pain, sick, weak

I’m so stressed out!

March 12, 2010 by Tricia

I haven’t been feeling like my normally cheery self the last few days. Not even close …

I’ve had two colds or perhaps one loooong cold almost all year! Out of the 10 weeks that we’ve had so far in 2010 I’ve only had two that were cold free. That sucks! I do think I’m finally starting to recover from this latest cold though so maybe in a few days I’ll be done with this virus once and for all.

We’ve also continued to have trouble with our awful renter neighbors. They were supposed to be kicked out by the Sheriff on March 2nd … but as I suspected the home owners daughter in law didn’t do all the paperwork correctly so now they’re going to be evicted by the sheriff on the 23rd. Hopefully they pack up and move on their own this weekend or the next as I think if it comes down to a formal eviction things are going to get nasty. These people are just bad evil nasty people.

I’ve been more stressed the last few days because the renter neighbors – who’s turn it is this month to use the tiny shared driveway we have – have been having a lot of cars going in and out at all hours of the night.

I haven’t had much sleep in the last few days because our dog barks every time she hears our neighbors “visitors” slamming their car doors or talking just outside our house … you know at 2, 3 and 4 a.m! Grrrr

Plus my brother was visiting from Vancouver over the last week so I was staying up to try to keep the dog quite while our neighbors were doing whatever stuff they were doing in the middle of the night.

Now thanks to the cold and all the stress I’ve been under my Crohn’s is really acting up and my abdomen feels like I just had bariatric surgery or something. I mean … it hurts. I don’t want to do anything but lie on the couch and not move, because every time I move or drink or eat anything my abdomen hurts really bad. Damn Crohn’s. What a terrible disease this is.

Hopefully if I take it easy over the next few days my Crohn’s will settle down, my cold will go away and I’ll start to feel better. With any luck our awful renter neighbors will move out on their own as well … I know that will help me de-stress!

Filed Under: Chronic Pain, Health Fitness and Beauty, Home and Lifestyle, Inflammatory bowel disease, Items to Try, The Neighborhood, Toronto, Trouble sleeping Tagged With: abdomen, all hours, awful neighbors, cars, cold, crohns, disgusting, driveway, evicted, Evil, nasty, neighbors, night, pain, renters, sheriff, slamming doors, Stress, stressed, virus

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