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You are here: Home / Archives for Health Fitness and Beauty / Inflammatory bowel disease

Sleep Clinic Hell

May 12, 2006 by Tricia

What a week! Have you ever had one of those weeks where you feel like you’ve been really busy, but when you stop and think about it you realize you didn’t finish everything that you wanted to do, or that you were procrastinating on a few things? Well, that’s the kind of week I’ve had.

I guess I should have known it wasn’t going to be a good week. Last Sunday night I couldn’t sleep at all. Mostly because I had a lot of abdominal pain. So I dragged myself around all day Monday.

Tuesday I was bitchy all day because I had to go to that sleep study appointment. I was right to be in a bad mood about it. The tech that was caring for me all night wasn’t very friendly. I tried to get her talking but I wasn’t very successful. I did find out that she’s a psychology major and attends classes all day, then works at the sleep study clinic three nights a week. I guess she was tired but it would have been nice if she’d been a little bit friendlier.

I got there at 8:30 p.m. just as I was told to, and I was led to my bedroom where I was told to fill out a number of papers. I finished the papers within 10 or 15 minutes and then I sat and waited for the tech to come back. I eventually started to read my book because she was taking so long. She finally came back at 9:30 and had expected me to be dressed for bed. “uhm, you didn’t tell me that”. So she left again for another 30 minutes. It doesn’t take me that long to change my clothes. Really!

When she came back she led me to a room where I was weighed, my height measured, and my throat circumference taken. The throat measurement worried me because I thought they were going to put something around my neck! It turns out that my neck was about the only thing that didn’t have something placed on it.

I ended up with wires stuck to my legs, chest, shoulder and all over my head. Most of them were on my head actually. They were stuck on with a thick wax like paste and white paper surgical tape. I had at least 6 wires attached to my face, right beside my eyes, mouth and on my cheeks. Then she strapped a belt around my body under my arms and across my breasts, and a second one around my waist. Oh fun, I can’t breath!

I walked back to my room thinking that it was a good thing all these wires were so thin. It was kind of like being covered with vermicelli noodles. There were 23 wires stuck in the “sandman” machine that was attached to me.

I was allowed to go to bed at midnight but I had to call the tech into the room at some point prior to that to attach the wires to the beside machine. I called her at 11:30 so that her coming into the room wouldn’t disturb my sleepiness, if I was sleepy, which I wasn’t. What I was, was in pain! I had taken a pain pill before I got there. Partly because I was having pain at that time, and in part because I know they make me a little bit sleepy. By 9:30 I had another, and I had yet another one at 11:30 plus a half Percocet. Yes, that should have taken care of the pain and made me comatose. Did it? No!

The tech came into the room at about 11:30 and attached the wires to the bedside machine, and then she put yet another thing around my head – it was something that rested just under my nose. I’m presuming it was to measure my breathing during sleep but she wouldn’t answer my questions so I have no idea if my guess is correct. I also had a pulse-oximiter placed on one of my fingers to measure my O2 content and heart beat. Then she left the room after telling me that she was going to talk to me on the intercom and run some tests.

I’m glad that I asked her to hook me up before my official bedtime because setting up the machinery took about 10 minutes. When she came on the intercom I had to move my eyes up and down several times, then side to side, then hold my breath, breath normally, and then hold my breath and move my stomach in and out. I did the stomach thing for about a minute before she told me I could stop. This was the most hateful test due to my abdominal pain.

Since I couldn’t get out of bed to turn out the light on my own she came back promptly at midnight to turn it out. I wasn’t pleased. I was almost wide awake and I wanted to continue reading as I usually get very sleepy when I read. She wouldn’t let me. Hey, I had a bedside lamp beside me, I could have read and turned out that light on my own- but no, I wasn’t allowed. So I ended up lying awake until sometime after 3:30 am. Getting boob wedgies from the tight band she’d placed around my chest. I heard every streetcar go by, all the partiers outside on the street, delivery trucks backing up. Everything.

With 3 tramadol and a half percocet coursing through me I should have been deeply asleep, but I was still in pain and just couldn’t get to sleep. I finally fell asleep only to wake up again by 5:30 am. I lay in bed until almost 6:30 and then I called the tech to come and unhook me so I could have my shower and get the heck out of there.

I practically ran out of the clinic when I was able to! I was free, I was free! I went home and unfortunately still couldn’t sleep. I did have an hours nap that evening though, so that helped.

I’ve spent the rest of the week feeling blah. My tummy is just in an uproar. It’s not happy, and when it’s not happy I can’t sleep and I can’t do much else either. I’m supposed to be at a party tonight. My husband went, and he’s playing guitar on the stage that they set up in the hall and I’m missing it. I’m disappointed. I really wanted to go and see my friends, and watch Chris perform.

Plants to go in the garden sitting on my patio table

As for the procrastinating bit. Last Friday Chris and I went to one of my favorite garden centers and picked up some more plants for the garden. Mostly annuals for summer color, but yes, I bought some more perennials (permanent plants) and I have no idea where I’m going to put them! In all, we bought 347 plants! I know that sounds like a lot but most of them were in those little containers that hold 4 plants each. They add up quickly. Why did I buy so many? lets see, I have three hanging planter boxes to fill, and 7 hanging baskets, 4 pots, 2 strawberry pots, and 4 rectangular plant boxes to stuff with blooms. The remainder will go along the edges of my flower beds. I’ve been meaning to get this done all week, but just haven’t had the energy to do it. Now it’s supposed to rain on and off all weekend. Well, if they don’t get planted at least they will be watered. Have to look on the bright side.





Filed Under: Chronic Pain, Health Fitness and Beauty, Inflammatory bowel disease, Tricia's Garden Tagged With: annuals, Chronic Pain, crohns, garden, Health and Fitness, Health Fitness and Beauty, IBD, Inflammatory bowel disease, no sleep, pain, plants, Procrastinate, sleep study, Tricia's Garden

Off to the Sleep Clinic

May 9, 2006 by Tricia

I’ve been a TOTAL bitch today. No smiles, no laughter. Nope, just a bitch. If you met me in person you’d know this is very much the opposite of my personality. Yes I can be grouchy and bitchy at times, but never all day. Why am is so bitchy? well, because …

I am not looking forward to going to the sleep clinic tonight. Nope, not at all.

I mean, I really don’t have problems sleeping. It’s the pain that I’m in that keeps me from trying to go to bed, or if I’m feeling ok, I simply just don’t want to go to sleep. If I’m not having pain I want to enjoy the feeling, so why would I sleep? Would you?

I’m actually going for the sleep study because I have problems sleeping after working a night shift. However, I haven’t worked a night shift since early December, and I’m not going back to work due to my illness until near the end of July if my illness has calmed down.

So why am I going now? Because my doctor wants me to. Even the sleep study doctor didn’t understand the request, although he did want to put me in a study for insomnia due to pain. Uh, that was the marijuana pill study, and I haven’t heard from the researchers running that study so I’m assuming I didn’t qualify, or perhaps they are waiting for me to complete the sleep study before contacting me. Who knows.

My poor husband. I’ve been miserable today. Very bitchy, grouchy, you name it. I just don’t want to go to the study, and I’m sure that because I don’t want to go and since I’ve let it ruin my whole day, I probably won’t sleep.

I am going to try to sleep. It would be pointless not to, plus, what else am I going to do there? They already told me they won’t let me leave even if I can’t sleep.

When I escape from the clinic tomorrow morning I’ll come home and tell you all about how they tortured me. Ok? I think I might bring my camera too. No, not to take pictures of the clinic (I might though), but to take some pictures in the morning while I’m downtown. I’ll probably be so happy to escape that I’ll walk to the nearest subway station, which is a 10 or 15 minute walk from where I’ll be. If I see any good sights to take some photo’s of, I’ll be sure to whip my camera out and capture them. As with any big city, the downtown area can be interesting in the early morning.

I’m going to post my Wordless Wednesday photo early. Perhaps by 7:30 pm E.S.T. as I’ll need to leave for the clinic by 8 p.m. Come back and find out what I posted. I’m trying to decide if I should post something that reflects my current mood or not.

Filed Under: Chronic Pain, Health Fitness and Beauty, Home and Lifestyle, Inflammatory bowel disease Tagged With: bitchy, doctor, Downtown, grouchy, Health and Fitness, husband, illness, life, miserable, night, pain, sleep, sleep clinic, sleeping

Medical Marijuana?

April 20, 2006 by Tricia

I’m amazed at the traffic in this city. Toronto is after all the 5th largest city in North America so what did I expect! I Live almost downtown- A 10 to 15 minute drive if there is little traffic. My sleep clinic appointment was at 3:30 right in the middle of the down town area, and of course right at the start of rush hour. It took us 45 minutes to get there. Which wasn’t too bad when you compare that to how long it took us to get home- 1 hour and 20 minutes!

My husband was driving and for some reason he took the streets that are always busy, 24 hours a day. As we drove home I was wishing that I had brought my camera with me. Since we were sitting in traffic most of the time I could have taken some great shots of this diverse city. We drove through Kensington Market, the heart of China Town, the Fashion district, Queen Street West- the hip area, the financial district, the slums of East Dundas all the way to my area which is called “The Danforth” or Greek town.

If I’d had my camera I could have shown you just how different each area is from the next. It’s a beautiful city. If you’ve never been here before I think you should make plans to come for a visit. Let me know if you’re coming- I’ll be your tour guide.

Oh, we saw three movies being filmed on the way there and back too.

The sleep clinic doctor was very nice. I mean very, very nice. He was tall and handsome and quite friendly. I don’t think I’ll mind my next appointment with him at all. I saw a literally 80 year old allergist last week with poop breath, so this new doctor was refreshing.

The Dr. isn’t quite sure what my sleep problem is right now. I was sent to him to evaluate my problem getting to sleep after a night shift, but since I haven’t been to work for the last 5 months due to my illness he can’t really evaluate my sleep pattern related to my shift work. I do have a bit of a problem though … I mean, it’s 4 am and I’m sitting here on the computer instead of sleeping like I imagine most of you in my part of the world are probably doing.

I think we’ve decided that at this time, my biggest problem is my pain and how it affects my sleep. The abdominal pain wakes me in the night but usually isn’t too bad when I first get up. However, as I go through the day and eat food the pain gets worse and is usually quite bad by late evening onward which makes it harder for me to feel sleepy or want to go to sleep.

Now that I think about it, maybe you are keeping me up too? All the great writing as I surf and battle. If all of you would just write something boring for the next day or two maybe I’d decide to give up and go to bed?

He’s sending me for a sleep study. They tried to book it for next Monday night but I said no way! Next week is the first week in a long time that I don’t have a single doctors appointment booked. I’m looking forward to that. Plus I have a big wedding to get ready for. So I’m going to do the sleep study the following week. Not looking forward to that! I have to be there at 8:30 pm and they told me that lights are out at 11 pm. When I told them that it’s very unlikely that I’ll be able to sleep at eleven they called the Dr. and I now have special permission to go to bed at midnight when I do the test. Yeah! That will still be a problem but I’m going to try.

The Dr. also told me that there is a clinical trial going on that has something to do with insomnia related to pain. He called the researcher while I was there and left a message to see if I could get into the trial. I may not be able to because I have a chronic disease but he tried. Hopefully I’ll find out whether I’m in or not by the end of the week.

I don’t know much about the clinical trial other than that it involves the use of medical marijuana. In the past I’ve had people ask me “Are you smoking Pot?” when I’ve done something dumb, and in the last two years I’ve had a lot of people tell me that I should be smoking it … well now I might end up taking it in capsule form.

At this point I’m just about willing to try anything that will dull the pain that I’m in, so I hope that I do get a chance to be in this trial.

I’m pretty sure a lot of you have tried smoking and or eating pot before, maybe some of you are doing it right now, but have any of you used it therapeutically? As in for nausea, pain, or to help you sleep? I’d be interested in hearing your comments on the subject.

Speaking of smokin’, my pal Ed over at Parenting Toys is still burning up in the Texas heat. Maybe if you all go visit him at once from this site a waft of cool Canadian air will surround him and make him feel more comfortable? Doesn’t work that way huh? Well give it a try anyway.

Update: March 7th, 2007: Duh, I just realized that the date I originally wrote this post was 420. LOL How funny is that? I just thought I’d update this to let you know that I didn’t do the study with the sleep doctor. I would have had to give up my pain meds for a month or more at a time and I just couldn’t do that. However, I do have a pain doctor now and I saw her this past Monday and she finally prescribed the medical marijuana PILLS, well capsules. I’m going to try my first one tomorrow night. Wish me luck!

Filed Under: Health Fitness and Beauty, Home and Lifestyle, Inflammatory bowel disease, Life with Chris Tagged With: Canada, Chris, clinical trial, crohns, Health and Fitness, Home and Lifestyle, husband, IBD, Inflammatory bowel disease, Life with Chris, medical, Medical Marijuana, night, pain, sleep, sleep clinic, sleeping, study, Toronto, traffic

Pupsickle Contest

March 25, 2006 by Tricia

It wasn’t hard to pick my latest renter Pupsickle. Erin lives in the land of the midnight sun and I enjoy reading about life in her beautiful frozen land. If you look through her site you’ll find some great pictures of Alaska’s ice sculpture contest, her dancing dog, vacation pictures and so much more. I like the way Erin writes about life. I particularly enjoyed one of her recent posts “Things I know for sure” . It’s humorous, and I’m sure we can all related to a few of the items on her list.

Contest:

I’ll give you a little incentive to visit Erin’s site, although I think that when many of you get there and actually start reading her site you won’t really need the push.

Visit Pupsickle and then send me an e-mail telling me what vegetable she loves to torture her husband with, and your bl0gmad user name. My e-mail can be found in the upper left hand column under “about me”.

**Hint** read her post titled: Update (March 21, 06)

On Friday March 31st, I will put all the names of those who have entered, and given the correct answer, into a hat and randomly select THREE winners.

If you are not already a member of bl0gmad please click on one of the links above and go register. You’ll get a lot of hits to your site and will likely get some regular readers as a result of joining the site so it’s a win win situation.

Thank you for all of the comments on my last post. I believe it’s a site record! Just to be clear though- I love writing and I have been enjoying the bl0gging format and it’s ease of use. As one of my commenters put it- it’s “the peripheral side of blogging” that got to me. I know visitors and regular readers will eventually come even if I don’t surf my brains out at all the traffic sites. it’ll just take a lot longer.

I just got a little bit down because I’ve been spending so much time doing the “peripheral” activities that it started to take away from my enjoyment of actually writing new posts for my site. I too have found some great sites while surfing on the various traffic engines and I wouldn’t have found them if I hadn’t have been surfing. There are pro’s and con’s to everything and I suppose yesterday I was seeing and feeling more of the negative side, perhaps more than I ever had before.

I’ve also been feeling absolutely horrid the past three or four days and that has got me more than a little down. BTW it takes a LOT to get me down. As my few regular readers might know I have Crohn’s disease which is an inflammatory bowel disease. It’s painful, life changing, occasionally embarrassing, and sometimes life threatening, and on top of that it’s name sucks!

I’ve been in so much pain of the last few days that I’ve taken more pain medicine than I ever have in the past. Mind you, thanks to my doctors stupidity I’ve only had pain medicine available to me for the last two months but that’s another rant.

Anyway- I think I have another partial bowel obstruction. I’m a nurse- I know the signs, and I’ve experienced it several times in the past so I’m pretty sure that’s what is going on. I also know from both my work and my past experience that unless it gets really bad or becomes a total blockage that if I were in the hospital they would mainly pump be full of I.V. fluids, perhaps up the meds I’m already taking and just keep an eye on me. I might be being both a stupid nurse and a stupid patient right now but I am NOT going to the hospital. Not yet. If it gets worse I definitely will. It’s just two blocks away.

One pro of having this problem- perfect way to lose weight. I’m living on water and broth right now. One con- PAIN!

I’m mainly only telling you guys this because:

1. it helps explain my mindset from yesterday a little bit better.

2. There is a chance that I might have to go to the hospital and if I do I will likely be admitted. This could delay the contest that I’ve just started. Don’t worry- I’ll draw names when I return if that happens. But it won’t – right?

3. This is my bl0g and while I really don’t want to make it a Crohn’s or “living with pain” bl0g, I am going to talk about what I’m going through on occasion mostly because this disorder has become my life in the last year and a half. In fact I just got put off work for another four months as a result of what I’m going through. So every once in a while I’m likely going to bring it up.

Ok, enough of that! Check back late this afternoon or sometime this evening. I made an interesting discovery Friday evening and I’d like to share it with my readers.

Filed Under: Contest, Health Fitness and Beauty, Inflammatory bowel disease, Rent my site, Website Promotion Tagged With: comments, Contest, crohns, Health and Fitness, IBD, Inflammatory bowel disease, pupsickle, regular readers, Rent my site, traffic sites, Website Promotion, win credits

Spring Resolutions

March 21, 2006 by Tricia

Mauve Fringed Tulip in my garden

I don’t get out much.Yes – I just came to that realization. I went to the doctors yesterday and I was sitting there trying to think when I last stepped outside my house and I think it was for my last doctors appointment about a week and a half ago. Pathetic isn’t it?

You’d think I was an old lady from what I just said above wouldn’t you? NOT. I just have a belly ache that won’t go away. I’m starting to feel like this is my theme song:

“She put the lime in the coconut, she drank ’em both up (3x)
Put the lime in the coconut, she called the doctor, woke him up,
and said, Doctor, ain’t there nothin’ I can take,
I said Doctor, to relieve this bellyache,
I said Doctor, ain’t there nothin’ I can take,
I said Doctor, to relieve this bellyache”

Actually, just listening to that song makes me feel better. Maybe I should either play it all day, or trying putting the lime in the coconut and drink it all up? I’d probably end up adding some rum if I did the lime and coconut though. Wouldn’t you?

But it was nice being out yesterday. My husband and I made an outing of it and got some groceries done and stopped to get some food for the turtles. No- I’m not going to tell you what we bought for the turtles- it will gross you out.

I sat in the car while my husband popped into the store. The radio was playing a run of David Bowie songs. I forgot how much I like David Bowie. They were playing China girl while I waited. Kind of ironic since I was sitting in Toronto’s little china town in the East end at that time.

That’s what I should do to make myself feel better, play music all day. But of course if I play music all day I’d eventually end up dancing to a song or two. Might as well set up a webcam if I’m going to do that and be like the Daily Dancer. Yep, I could give all my visitors a daily dance. Of course since I’m a girl some of you would probably want to see a different kind of dance than what the Daily Dancer does.

Anyway, I’m glad that Spring is finally here! That should make me feel better too. I can’t wait for my garden to really start waking up. Naturally, as it starts to wake up I’ll have to get out and there and do some work, but I enjoy that.

I’m also going to try to get out for a walk everyday now that spring has arrived. Murphy’s Law dictates that as I sit her typing out this post it’s -8 Celsius. Brrrr. I think I’ll wait until the afternoon when it’s bound to be warmer.

Oh, I think I have a way to solve some of my upcoming money woes! No- I’m still not going to do that kind of dance! I’d need to put a lot of rum in the coconut to end up doing that! Get your minds out of the gutter will you?

A few people that my husband and I work with rent out a room in their house to students coming in from other Countries to study English or other courses. Sometimes the student stays in your home for as little as one week, or two weeks. I think the longest is one month. One agency pays $750 for boarding a student in your home for a month. I believe you have to provide one or two home cooked meals a day along with the room. No problem. We have a three bedroom house, and right now there is just the two of us. Our co-workers who do this say that the students are barely ever home. If that’s true we’d still have a lot of privacy. I think we are going to try it out. At least it’s short term and if we don’t like it we don’t have to do it again.

I’d like to thank everyone who has commented on my new theme. I’m very happy with it. The color is a nice spring – like color isn’t it?

Filed Under: Health Fitness and Beauty, Home and Lifestyle, Inflammatory bowel disease, Recreation Tagged With: Coconut Harry Nilsson, crohns, David Bowie, flowers, garden, Health and Fitness, Home and Lifestyle, IBD, Inflammatory bowel disease, Music, plants, spring

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