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You are here: Home / Archives for Health Fitness and Beauty / Chronic Pain

Sleep Clinic Hell

May 12, 2006 by Tricia

What a week! Have you ever had one of those weeks where you feel like you’ve been really busy, but when you stop and think about it you realize you didn’t finish everything that you wanted to do, or that you were procrastinating on a few things? Well, that’s the kind of week I’ve had.

I guess I should have known it wasn’t going to be a good week. Last Sunday night I couldn’t sleep at all. Mostly because I had a lot of abdominal pain. So I dragged myself around all day Monday.

Tuesday I was bitchy all day because I had to go to that sleep study appointment. I was right to be in a bad mood about it. The tech that was caring for me all night wasn’t very friendly. I tried to get her talking but I wasn’t very successful. I did find out that she’s a psychology major and attends classes all day, then works at the sleep study clinic three nights a week. I guess she was tired but it would have been nice if she’d been a little bit friendlier.

I got there at 8:30 p.m. just as I was told to, and I was led to my bedroom where I was told to fill out a number of papers. I finished the papers within 10 or 15 minutes and then I sat and waited for the tech to come back. I eventually started to read my book because she was taking so long. She finally came back at 9:30 and had expected me to be dressed for bed. “uhm, you didn’t tell me that”. So she left again for another 30 minutes. It doesn’t take me that long to change my clothes. Really!

When she came back she led me to a room where I was weighed, my height measured, and my throat circumference taken. The throat measurement worried me because I thought they were going to put something around my neck! It turns out that my neck was about the only thing that didn’t have something placed on it.

I ended up with wires stuck to my legs, chest, shoulder and all over my head. Most of them were on my head actually. They were stuck on with a thick wax like paste and white paper surgical tape. I had at least 6 wires attached to my face, right beside my eyes, mouth and on my cheeks. Then she strapped a belt around my body under my arms and across my breasts, and a second one around my waist. Oh fun, I can’t breath!

I walked back to my room thinking that it was a good thing all these wires were so thin. It was kind of like being covered with vermicelli noodles. There were 23 wires stuck in the “sandman” machine that was attached to me.

I was allowed to go to bed at midnight but I had to call the tech into the room at some point prior to that to attach the wires to the beside machine. I called her at 11:30 so that her coming into the room wouldn’t disturb my sleepiness, if I was sleepy, which I wasn’t. What I was, was in pain! I had taken a pain pill before I got there. Partly because I was having pain at that time, and in part because I know they make me a little bit sleepy. By 9:30 I had another, and I had yet another one at 11:30 plus a half Percocet. Yes, that should have taken care of the pain and made me comatose. Did it? No!

The tech came into the room at about 11:30 and attached the wires to the bedside machine, and then she put yet another thing around my head – it was something that rested just under my nose. I’m presuming it was to measure my breathing during sleep but she wouldn’t answer my questions so I have no idea if my guess is correct. I also had a pulse-oximiter placed on one of my fingers to measure my O2 content and heart beat. Then she left the room after telling me that she was going to talk to me on the intercom and run some tests.

I’m glad that I asked her to hook me up before my official bedtime because setting up the machinery took about 10 minutes. When she came on the intercom I had to move my eyes up and down several times, then side to side, then hold my breath, breath normally, and then hold my breath and move my stomach in and out. I did the stomach thing for about a minute before she told me I could stop. This was the most hateful test due to my abdominal pain.

Since I couldn’t get out of bed to turn out the light on my own she came back promptly at midnight to turn it out. I wasn’t pleased. I was almost wide awake and I wanted to continue reading as I usually get very sleepy when I read. She wouldn’t let me. Hey, I had a bedside lamp beside me, I could have read and turned out that light on my own- but no, I wasn’t allowed. So I ended up lying awake until sometime after 3:30 am. Getting boob wedgies from the tight band she’d placed around my chest. I heard every streetcar go by, all the partiers outside on the street, delivery trucks backing up. Everything.

With 3 tramadol and a half percocet coursing through me I should have been deeply asleep, but I was still in pain and just couldn’t get to sleep. I finally fell asleep only to wake up again by 5:30 am. I lay in bed until almost 6:30 and then I called the tech to come and unhook me so I could have my shower and get the heck out of there.

I practically ran out of the clinic when I was able to! I was free, I was free! I went home and unfortunately still couldn’t sleep. I did have an hours nap that evening though, so that helped.

I’ve spent the rest of the week feeling blah. My tummy is just in an uproar. It’s not happy, and when it’s not happy I can’t sleep and I can’t do much else either. I’m supposed to be at a party tonight. My husband went, and he’s playing guitar on the stage that they set up in the hall and I’m missing it. I’m disappointed. I really wanted to go and see my friends, and watch Chris perform.

Plants to go in the garden sitting on my patio table

As for the procrastinating bit. Last Friday Chris and I went to one of my favorite garden centers and picked up some more plants for the garden. Mostly annuals for summer color, but yes, I bought some more perennials (permanent plants) and I have no idea where I’m going to put them! In all, we bought 347 plants! I know that sounds like a lot but most of them were in those little containers that hold 4 plants each. They add up quickly. Why did I buy so many? lets see, I have three hanging planter boxes to fill, and 7 hanging baskets, 4 pots, 2 strawberry pots, and 4 rectangular plant boxes to stuff with blooms. The remainder will go along the edges of my flower beds. I’ve been meaning to get this done all week, but just haven’t had the energy to do it. Now it’s supposed to rain on and off all weekend. Well, if they don’t get planted at least they will be watered. Have to look on the bright side.





Filed Under: Chronic Pain, Health Fitness and Beauty, Inflammatory bowel disease, Tricia's Garden Tagged With: annuals, Chronic Pain, crohns, garden, Health and Fitness, Health Fitness and Beauty, IBD, Inflammatory bowel disease, no sleep, pain, plants, Procrastinate, sleep study, Tricia's Garden

Off to the Sleep Clinic

May 9, 2006 by Tricia

I’ve been a TOTAL bitch today. No smiles, no laughter. Nope, just a bitch. If you met me in person you’d know this is very much the opposite of my personality. Yes I can be grouchy and bitchy at times, but never all day. Why am is so bitchy? well, because …

I am not looking forward to going to the sleep clinic tonight. Nope, not at all.

I mean, I really don’t have problems sleeping. It’s the pain that I’m in that keeps me from trying to go to bed, or if I’m feeling ok, I simply just don’t want to go to sleep. If I’m not having pain I want to enjoy the feeling, so why would I sleep? Would you?

I’m actually going for the sleep study because I have problems sleeping after working a night shift. However, I haven’t worked a night shift since early December, and I’m not going back to work due to my illness until near the end of July if my illness has calmed down.

So why am I going now? Because my doctor wants me to. Even the sleep study doctor didn’t understand the request, although he did want to put me in a study for insomnia due to pain. Uh, that was the marijuana pill study, and I haven’t heard from the researchers running that study so I’m assuming I didn’t qualify, or perhaps they are waiting for me to complete the sleep study before contacting me. Who knows.

My poor husband. I’ve been miserable today. Very bitchy, grouchy, you name it. I just don’t want to go to the study, and I’m sure that because I don’t want to go and since I’ve let it ruin my whole day, I probably won’t sleep.

I am going to try to sleep. It would be pointless not to, plus, what else am I going to do there? They already told me they won’t let me leave even if I can’t sleep.

When I escape from the clinic tomorrow morning I’ll come home and tell you all about how they tortured me. Ok? I think I might bring my camera too. No, not to take pictures of the clinic (I might though), but to take some pictures in the morning while I’m downtown. I’ll probably be so happy to escape that I’ll walk to the nearest subway station, which is a 10 or 15 minute walk from where I’ll be. If I see any good sights to take some photo’s of, I’ll be sure to whip my camera out and capture them. As with any big city, the downtown area can be interesting in the early morning.

I’m going to post my Wordless Wednesday photo early. Perhaps by 7:30 pm E.S.T. as I’ll need to leave for the clinic by 8 p.m. Come back and find out what I posted. I’m trying to decide if I should post something that reflects my current mood or not.

Filed Under: Chronic Pain, Health Fitness and Beauty, Home and Lifestyle, Inflammatory bowel disease Tagged With: bitchy, doctor, Downtown, grouchy, Health and Fitness, husband, illness, life, miserable, night, pain, sleep, sleep clinic, sleeping

Gurgles and growls

March 19, 2006 by Tricia

Does your body ever make noises that make you wonder just what the heck is going on? No … I’m not talking about gas!

In my case I’m talking about my stomach and upper digestive tract. Every time I take a drink of something I can hear it- very loudly, gurgle it’s way down to my stomach. Then it errrrps and eorrrrs for a while. Same kind of thing happens when I eat. It’s not your normal stomach growls- like when you are hungry.

It’s almost like my abdomen is talking. Talking very very loudly! This goes on for hours- pretty much from the time I get up in the morning and take my first meal until well after the last meal of the day. Grrrrrrr, urpppp, eoooooooooow. It’s like I have a baby dinosaur in my tummy, or at least the sounds it makes is what I imagine a baby dinosaur would make.

It’s probably happening because my insides are inflamed and narrowed … but it’s so loud! My husband can hear it from across the room. I’m not embarrassed by it … well, a little when I’m at work and taking care of a patient. I just tell them I’m hungry, even though it does not sound like hunger growls. Mostly I find it amusing. It’s as if my stomach is having a conversation with me.

So- does your body make noises that you either find amusing or that you find very embarrassing? (again NOT gas!)

And finally-

Lydia tagged me!

The rules:

List seven songs you’re into right now. No matter the genre, whether [or not] they have words, or even if they’re any good, they must be songs you’re really enjoying right now. Post these instructions in your blog along with your seven songs, then tag seven other people to see what they’re listening to.

Ok. None of these are current songs. I haven’t been listening to the radio lately, but I have been listening to my CD’s, mp3’s, and my husband practicing song after song on his guitars …. so here goes:

Beautiful Day – U2
Daniel – Fuel
Seven Nation Army – White Stripes
Outside – Staind
Psycho Killer -Talking Heads
Lunatic Fringe – Tom Cochrane
Seasons in the Sun – Terry Jacks

Now, to tag 7 people? Hmmmm I’m still kind of new to the blogging world and don’t know that many of you yet. Forgive me if you don’t like being tagged? Please?

Pajama Mama

Pupsickle

Vandelay Industries

Taste the World

Whatchu Tawkin Bout

PlusUltra

Echo Mixed Nuts

The sites above are all very good sites. Visit them and see if they played the tag game. 🙂

Filed Under: Blog traffic exchanges, Chronic Pain, Health Fitness and Beauty, Home and Lifestyle, Inflammatory bowel disease, Website Promotion Tagged With: abdomen, Blog traffic exchanges, crohns, Gurgles, Health and Fitness, IBD, Inflammatory bowel disease, Music, noise, songs, stomach, Website Promotion

Argh Doctors

February 9, 2006 by Tricia

Have you ever been seen by a Doctor that just didn’t listen to you? Well, that’s what my dr.’s appointments have been like lately.

You see, I suffer from Crohn’s, or at least most of my doctors have thought that I have this terrible inflammatory bowel condition for oh more than a decade. They keep doing tests and finding signs that I might have this disorder- but officially not enough evidence to fully diagnose me. At various times they have found narrowing of the terminal ilium, nodules in the ilium, dilated mucosal folds in the small bowel, granulated tissue on biopsy, and I’ve had several episodes of paralytic ileus (bowel obstruction).

I won’t mention all the lovely symptoms that I have that also go along with Crohn’s but during flares I’ve had huge drops in weight- although this time round I’ve actually gained weight- that’s a first!, low grade fevers daily, pain, pain and more pain, nausea and all those other “unmentionable” symptoms.

I’ve barely been to work in over a year. I’m an emergency nurse. I want to get back to work. My doctor doesn’t seem to really be trying to help me. Oh, I’m seeing him at least once a month, but he doesn’t schedule new tests to try to figure things out- he only talks about doing such and such a test or trying a new medication, but somehow by the end of the appointment I’m walking out of his office with no new medicine to try and no new test scheduled.

It’s not like I’m not telling the doctor how I’m feeling or discussing my symptoms. It’s just that he’s not listening.

He started talking about my taking a capsule endoscopy test in April 2005. Basically you swallow a camera pill and it takes pictures of your digestive tract as it travels through you- then doctors can study the pictures and decide if you have a disorder. Well, I still haven’t had the test, he keeps mentioning it but doesn’t work towards scheduling it (it’s done at another hospital and he needs to refer me to that program).

I’m tired of waiting to feel better. I’m tired of putting my life on hold because I’m in too much pain to do anything. I’m tired of taking pills- especially when the doses you’ve prescribed are not even maintenance doses, maybe if you gave me the correct dose I’d feel better.

If my doctor would actually listen to what I’m saying and not go back on what he has said we might get somewhere. I mean- I’m a nurse- I know how to articulate where my pain is, and what my symptoms are, likely better than the average patient. I know my body and I know something is wrong. I’m compliant, I’ve done everything he’s suggested, I’ve taken my medications as scheduled and I’m still not getting better. Something is wrong and we need to find out what it is, try some new things or new tests.

If you are a doctor or nurse out there reading this- please listen to your patients. Don’t get stuck in a rut or offer to help them and then not follow up on what you discussed. It’s very frustrating.

Frustrated and in pain in T.O.

Filed Under: Chronic Pain, Health Fitness and Beauty, Inflammatory bowel disease Tagged With: appointment, crohn, crohns, diagnose, didn t listen, doctor, dr, fever, flare, Health and Fitness, Health Fitness and Beauty, IBD, inflammatory bowel, Inflammatory bowel disease, medication, nausea, nurse, obstruction, pain, paralytic ileus, suffer, symptoms, test, weight

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