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You are here: Home / Archives for Health Fitness and Beauty / Chronic Pain

I’m so sleepy

January 29, 2007 by Tricia

I’m not sure what’s going on.

Ever since this past Wednesday when I had that medical test where I swallowed the Camera pill I’ve been sleeping all the time. I spent most of the day Wednesday sleeping- except for going to hospital twice to swallow the pill, and then later to give back some of the monitoring equipment.

Then I slept a lot on Thursday and Friday too. In fact I slept so much on Friday that by the evening I was wide away and ended up staying up until about 8 a.m Saturday morning – then I finally went to bed, but I didn’t sleep well. I slept on and off throughout the day on Saturday and finally got moving at about 4 pm. Then again … I fell asleep on the couch by 8 p.m Saturday night and didn’t wake up until 11:30 pm.

My husband had been nice and made dinner – which of course I slept through. I finally ate it when I woke up and then it sat in my stomach like a rock for hours. Sunday was a bit better, but I’m still zapped.

I’ve had a lot of fevers this week too.

Somethings going on.





Filed Under: Chronic Pain, Health Fitness and Beauty, Inflammatory bowel disease Tagged With: crohns, falling asleep, fever, Health and Fitness, IBD, Inflammatory bowel disease, sleeping, sleepy

Houston the pill has landed

January 26, 2007 by Tricia

Just a quick update on my camera pill experience.

I won’t get into the gory details but the camera pill that I swallowed at about 7:30 am Wednesday morning made it’s way through my body without any major problems, even if I did feel awful all day Wednesday!

It passed through me about 16 or so hours after I swallowed it. Again, no details other than the fact that it wasn’t flashing pics anymore even though I smiled down at it and said “cheese”!

All I can do now is sit and wait and hope that it took pics of my bad areas of small bowel, and that it made it’s way to the end of my small bowel (15 feet to travel!) before the transmitter was returned to the hospital on Wednesday afternoon. If it didn’t then I just wasted $1100 that I can’t afford to begin with let alone have it wasted on a test that didn’t do it’s full job.

Filed Under: Chronic Pain, Health Fitness and Beauty, Inflammatory bowel disease Tagged With: camera, camera pill, crohns, digital camera, digital pictures, Hospital, IBD, Inflammatory bowel disease, medical test, passed, photo, Photography, small bowel, test

I’ve got a camera in my tummy and I don’t know what to do with it

January 25, 2007 by Tricia

Thirteen Things about the camera in my tummy

This is Thursday Thirteen #32

1…. Early yesterday morning I swallowed a camera

2…. It’s true. I went to the hospital to do it.

3…. The medical test that I’m currently undergoing is called a Camera Endoscopy.

4…. The Camera takes 5 or 6 photos of my intestinal tract every second as it travels through my system.

5…. I’m doing this test so that the doctors can have a good look at my Crohn’s disease since they can’t see it at all when they do a normal gastroscopy or colonoscopy. It’s always been assumed that it’s deep in my small bowel. This is the only way to see the inside of the small bowel without having extensive surgery.

6…. So, yesterday morning I went to the hospital and got fitted with a halter that would hold the machine that would record what the camera was seeing (a hard drive?), and the very heavy battery pack. it felt like what I think a parachute halter would feel like.

7…. Then the really nice nurses in the endoscopy department started putting all the electrodes on my chest and abdomen in order to record exactly where the pill was in my body as it took the photos being stored on the hard drive.

8…. I had been told that the clinic did camera pill tests every Wednesday. It sounded like they did them every Wednesday, but considering that it took three nurses to figure out exactly where to place the electrodes and to fit me with the halter I don’t think they do the camera pill test all that often at all.

9…. Once I had the electrodes and the halter on they pulled out the pill that I had to swallow. It was / is about the size of a very large calcium pill (bigger). Look at your baby finger – ok the size of the pill is from the tip of your baby finger to the first knuckle, and the width is about the width of your ring finger. In other words it’s not a small pill.

10….The camera, before I swallowed it, flashed with a bright light several times each second. I joked with the nurses by asking them if I’d be able to stand in the dark and see it flashing inside me as it moved through my system? I did actually test my theory but I’m sorry to report that I didn’t have a funny abdominal light show going on, on the outside, but I know there’s still one going on, on the inside.

11…. I was home again by 8 am, but since I didn’t sleep well last night I fell asleep on the couch from 10 am until 1:30 pm Starving the whole time because I wasn’t allowed to eat until 11:30 am but of course I slept though that time. Before I fell asleep I had fantasies about eating, I was so hungry!

12…. I had to go back to the hospital for 3 pm to give them back the halter and pay for the test. $1100 for this little experiment folks and it’s not covered by our Ontario Health plan or by our Insurance company. We put it on Visa, and I have no idea how we’ll pay it off. I just hope that the pill reached the end of my small bowel before the data collection stopped, or else they might not have gotten as much info as they need to really help me.

13…. The test is so expensive because the pill is only used once. If you read one of my posts from yesterday I was worried that I might be swallowing a pill that someone else had pooped out the week before, but that’s not the case. Relief! Now I just have to wait for this darn thing to pass out of my body.

I didn’t feel well all day. I don’t think it’s because of the pill but I had major fevers all day and still have a fever as I write this. I also haven’t gone to the washroom since before I took the pill so I’m hoping that it didn’t get stuck anywhere. The camera pill is the exact same diameter as the small bowel and if I have narrowing it’s possible that it could get stuck. Let’s hope it didn’t.

Get the Thursday Thirteen code here!

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Filed Under: Chronic Pain, Health Fitness and Beauty, Inflammatory bowel disease, Thursday Thirteen Tagged With: camera endoscopy, camera in my stomach, camera pill, crohns, Health and Fitness, Health Fitness and Beauty, IBD, Inflammatory bowel disease, medical test, Not covered by insurance, pain

Going digital today

January 24, 2007 by Tricia

Early this morning I’m going to the hospital. I have to be there at 6:45 am. Yuck, why do I have to go so early?

I’m going there so that I can swallow a pill and get hooked up to some kind of transmitter.

The pill that I’m going to swallow is a Camera pill. The test is a camera pill endoscopy. The pill will travel through my system taking pictures every few seconds as it travels through my stomach, small intestines and large intestines.

I’m hoping that it doesn’t take photos of anything too serious, but it’s the only way to really have a good look at the small bowel, which is where my Crohn’s is. Perhaps once they fully know what they’re dealing with they will put me on some meds that will finally begin to work and make me feel better.

I have two concerns:

1. Did someone else swallow the same pill? Maybe last week? If they did that means I’ll be swallowing a pill that someone recently pooped out! Gross eh? Yeah, yeah I know it will have been sterilized. It’s just the thought. Wish me luck on not gagging as I try to get it down with that thought in my head!

2. I’m also hoping that the pill doesn’t get stuck anywhere. I know my insides are swollen and inflamed which means the passages are likely narrower than they should be. It’s quite possible that the pill could get stuck and if it does I’ll probably have to have it removed surgically.

So that’s what I’m doing today. What’s your plans?

I have no idea how long the pill will take to get through my system. Judging from how my body seems to work it could be anywhere from only a couple of hours to at least a full 24 hours.

When I return the pill and equipment I’m going to ask if I can have a copy of the pictures. Maybe you’ll get to see my insides!

Oh boy!

Filed Under: Chronic Pain, Health Fitness and Beauty, Inflammatory bowel disease Tagged With: 24 hour, camera, camera endoscopy, camera pill, Digital, digital camera, gag, Health and Fitness, Hospital, large bowel, photo, Photography, photos, pictures of small bowel, stomach, stuck, test

Crohn’s sucks

January 17, 2007 by Tricia

Just checking in.

I rested as much as I possibly could from Friday up until Monday, took all of my pain medications properly and I’m still in pain.

I give up. There doesn’t seem to be anything that I can do to make this Crohn’s attack stop.

In the last two and a half years I’ve done everything from watching every single thing I eat – and of course I still have to because there are things that I just can’t eat at all as they cause me pain and digestive problems. I’ve tried only having clear fluids – water, broth, jello, and flat ginger ale and then when I moved to solid foods I’ve tried only eating soft fairly bland foods – rice, chicken, apple sauce, scrambled eggs, boiled eggs and things like that. I’ve actually eaten fairly soft mild food items for most of the last two years because I can’t eat a lot of veggies- especially raw, or fruit as I just don’t tolerate them well at all.

I’ve been on meds for my crohns – a combination of antibiotics and anti-inflammatories and now I’m off all of those too. I had to stop the antibiotics in 2005 because I developed a reaction to them. the combo of antibiotics and Pentasa (the anti-inflammatory for the bowel) made me feel the best, but once I stopped the flagyl I started getting worse again. Now I’m off the Pentasa because my G.I. doc wasn’t sure that they were working, plus being off them might make it easier for the camera pill that I’m going to swallow next week to see whatever happens to be going on in there now.

I don’t know what to do. I don’t sleep because of the pain but I tried my best for almost four days to sleep as much as possible. I think it helped a bit but not enough.

This is the most frustrating disorder. I hate Crohn’s. I hate it!

Every week, or dare I say ever day, since I stopped the Pentasa has been worse than the one before. I can deal with almost all of the symptoms. The one that bothers me the most and is a constant is the pain. If the pain would just stop I’d feel so much better.

Filed Under: Chronic Pain, Health Fitness and Beauty, Inflammatory bowel disease Tagged With: bland diet, camera pill, clear fluids, crohn, crohns, flagyl, flare, frustrated, Health and Fitness, Health Fitness and Beauty, IBD, Inflammatory bowel disease, medication, pain, pain medication, pentasa, sick, symptoms

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