It seems I spoke too soon. My pain is back with a vengeance.
It’s just after 4 a.m. and I’m lying on the couch in severe pain. Crohn’s disease sucks. There I said it. It sucks. I hate it. It seems like my whole life revolves around this stupid disease. I can’t plan for next week or next month or even for tomorrow for that matter because I never know if I’m going to be feeling well enough to do anything.
Yesterday was the first day in more than a week that I felt ok. Ok doesn’t mean I feel well. It means I feel well enough to get some things done, go for a walk, do some shopping, get some house work done etc.
I’m certain that I had a bowel obstruction over the weekend. It resolved over night and I awoke on Monday feeling a lot better. As a result I probably ended up doing too much yesterday.
Chris was home since Monday is his normal day off, but it also happened to be a holiday here in Ontario – Family day. It didn’t feel like a holiday weekend though … it just felt normal since as I said, Chris usually has Mondays off work.
Since Chris was home he did the dishes and started my day by grooming the puppy. She’s started shedding again in the past week or so and she’s shedding a lot! I sat on the kitchen floor brushing the puppy’s coat with the zoom brush and collected about three cups of hair! The floor was covered with hair and sweeping just wasn’t doing the job so I ended up vacuuming the whole house, the dogs two doggy beds and yes folks I even took the vacuum to the dog. Luckily she didn’t mind – she likes the vacuum.
The rest of my day was spent spending some time with Chris and our puppy, working on the computer on some of my sites and making dinner (baked chicken breast, steamed veggies and a fresh salad – most of that not being so hot for someone with Crohns – oh well!). I haven’t gotten much done on my active sites or the new sites for quite a while because I’ve been feeling so awful. The email is also piling up. I’ve got quite a few sites to add to the blogrolls that I run and several saved emails waiting for replies. I just can’t keep up with it all these days it seems.
By 10 pm my abdominal pain was coming back and my left knee was aching too. It seems the Crohn’s is going to my joints – or else it’s the weather, I haven’t figured that one out yet.
The pain has gradually gotten worse as the night progresses. My pain meds are doing absolutely nothing to touch the pain. If it keeps getting worse I’ll probably end up going to Emerg this time.
This totally sucks. I think I need new intestines … is there a market for that???
I worked with a nurse for several years that had Crohn’s disease. She was the same way. She couldn’t ever predict when she’d start feeling bad. It just hit her when it felt like hitting her and usually like a ton of bricks. I hope you start feeling better soon and are able to get a little more active without suffering the setbacks. Thanks for stopping by and commenting over at my place 🙂
I’m sorry hon. That really sucks. You can have some of mine, I hardly use ’em!
Hope over the pain soon. I’ve started the year with overdrive brains and had to take pills to calm down. I’m so happy to feel better now but I wasn’t able to do anything intellectual for a month – in my case that would be blogging.
Sorry to hear about your pain. Is there treatment?
Sorry about that pain. Fortunately you dog likes that vacuum!
I am sorry you are having such a horrible time of it. Sending lots of feel better vibes. LOL at the dog liking to be vacuumed though, Gizmo would freak out and try to eat it.
My brother has Crohns and there’s a good chance that I have it too. If you live by a whole foods store, pick up a gallon of distilled aloe juice. It tastes just like water, I promise, and has been proven to calm down the stomach/intestines during a flare up. My brother takes a shot everyday (and me too!). It really works. I hope you feel better soon!
Hello,
I am so sorry to hear you are going through this.
I’ve been doing a LOT of research on Crohn’s and other digestive disorders for my site, and I just read from 2 different women that their Crohn’s ebbed and flowed (if you’ll pardon the pun) with their menstrual cycle. I don’t know if that’s something that might be worth tracking, so you could have a better handle on your scheduling activities? Seems off the wall, sure, but stranger things have happened…
FYI – my latest article might be of some help to you:
http://www.joyfuldigesting.com/blog/breakthrough-in-treating-crohns/
Best of luck in getting this under control. Try to keep your chin up!