Two appointments down, one to go. What a busy week. Did I tell you I HATE seeing doctors? Especially when I know that they are having trouble figuring out how to help me?
The GI doc I saw yesterday would like to stop my pain meds. Hello? What did you say? I’ve been living in pain since 1992 and just finally was given pain meds for the hell I live in this past January after having been sick with a non relenting Crohns flare for a whole year prior to seeing the pain do, and I’m starting to function a bit better, and you what? want me to stop taking the pain meds?
Sure. Sure I will, but only if you’re going to pay my mortgage and house bills etc because I won’t be able to even sit up at the computer as I’m doing now without them. Yeah sure.
Yep that was pretty much the outcome of my latest GI appointment. He didn’t want to start me on any new Crohns meds, in fact he doesn’t think the Pentasa is doing anything for me either so why not stop that too.
I’ve been in a two year flare and he’s putting me back to square one without anything to help me get better? I was hoping he’d put me on another type of medication for Crohns to try to nip this in the bud so to speak and get me back to work. GEEZ.
I’m so frustrate.
Oh yeah … I can become a totally digital person by swallowing a camera pill to find out what’s going on inside my small bowel. Unfortunately our Insurance doesn’t pay for the $1200 or so test. I’m going to do it, but I have no idea how I’m going to pay for it.
Grrrr! I just wish a magic fairy would come by and tap me with her wand and fix this flare.
I think you need to get a second opinion.
Try a butt doctor. My husband had the same pain, thought he had IBS, then his doctor suggested he go to the specialist who found the problem. He had surgery and that’s where it was determined he had stage 3 colon cancer. I hope you get diagnosed correctly, like the first comment, go get a second opinion.
This is about the 6th Gastrointernologist that I’ve seen over the last 15 years. He’s the head of the GI department in the best hospital for this disorder in Toronto. So I’m pretty much seeing the best of the best. He’s trying to help, I’m just a very difficult case I guess.
The crohns is in my small bowel, the problem is that they can’t see it during most of the regular tests. They only have a few tests that they’ve done that have shown that it’s there … but as usual they want more proof. The only way to get exact proof is for me to swallow a camera pill which I think will likely end up getting stuck in my small intestine as it goes through me..
Flo – a true butt doctor is a proctologist. My problem is in the small intestine, so that’s why I’m seeing a gastrointernologist. I’m so sorry to hear about your husbands cancer and that it took so long to get a proper diagnosis for him. 🙁