Just checking in.
I rested as much as I possibly could from Friday up until Monday, took all of my pain medications properly and I’m still in pain.
I give up. There doesn’t seem to be anything that I can do to make this Crohn’s attack stop.
In the last two and a half years I’ve done everything from watching every single thing I eat – and of course I still have to because there are things that I just can’t eat at all as they cause me pain and digestive problems. I’ve tried only having clear fluids – water, broth, jello, and flat ginger ale and then when I moved to solid foods I’ve tried only eating soft fairly bland foods – rice, chicken, apple sauce, scrambled eggs, boiled eggs and things like that. I’ve actually eaten fairly soft mild food items for most of the last two years because I can’t eat a lot of veggies- especially raw, or fruit as I just don’t tolerate them well at all.
I’ve been on meds for my crohns – a combination of antibiotics and anti-inflammatories and now I’m off all of those too. I had to stop the antibiotics in 2005 because I developed a reaction to them. the combo of antibiotics and Pentasa (the anti-inflammatory for the bowel) made me feel the best, but once I stopped the flagyl I started getting worse again. Now I’m off the Pentasa because my G.I. doc wasn’t sure that they were working, plus being off them might make it easier for the camera pill that I’m going to swallow next week to see whatever happens to be going on in there now.
I don’t know what to do. I don’t sleep because of the pain but I tried my best for almost four days to sleep as much as possible. I think it helped a bit but not enough.
This is the most frustrating disorder. I hate Crohn’s. I hate it!
Every week, or dare I say ever day, since I stopped the Pentasa has been worse than the one before. I can deal with almost all of the symptoms. The one that bothers me the most and is a constant is the pain. If the pain would just stop I’d feel so much better.